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Monmouth Medical Center is pleased to now offer the Familial Colorectal Cancer Registry Program

Colorectal Cancer is the second most common form of cancer in the United States. It affects approximately 130,000 Americans and causes more than 45,000 deaths annually. The cause of colon is not entirely understood, but it appears that both hereditary and environmental factors play a role in its development. It is clear that colorectal cancer can often be prevented through regular examinations to detect polyps, benign (non-cancerous) growths of the intestine lining that may develop into cancer. If polyps are found, they can be removed without surgery so they will never develop into cancer. And if colorectal cancer is diagnosed in its early stages, the latest medical and surgical treatments offer a good chance for a cure. The Department of Gastroenterology Surgery at Monmouth Medical Center is at the forefront of colon cancer prevention through patient screening, education, detection and treatment. In conjunction with the High Risk Cancer Assessment Program at the Leon Hess Cancer Center, the Familial Colorectal Cancer Registry Program offers a multi-specialty team approach to the assessment of family risk, genetic counseling and testing and treatment of polyps and cancer. 

What is a Familial Colorectal Cancer Registry Program

The purpose of the Familial Colorectal Cancer Registry Program is to prevent death from colorectal cancer by providing the best care to patients and families, by promoting knowledge of the risks and implications of a family history of colorectal cancer, and by conducting important research in areas of concerns. The main role of a registry is to prevent colorectal cancer and:

  • to promote the knowledge of the risks and implication of a family history of colorectal cancer
  • provide the best care to patients and families

The registry will: provide patients with education about the disease, tests, surgical options and lifelong surveillance protocols; encourage participation in study protocols; discuss the appropriateness of genetic testing; and provide support to ease fear of tests and surgeries. One of the most important functions of the registry is to ensure that patients receive the best care and continue to have surveillance exams.

Joining a registry can be as simple as picking up the telephone, writing a letter, sending an e-mail or making an appointment with the registry. After talking to a member of the registry staff (usually the coordinator) about your family medical history, it can be determined if participation in the registry is appropriate for you and your family. Being in a registry does not affect your care with your own physician. It is important to note that patients in a registry are still under the care of their referring doctors. Registries do not assume the care of its participants. The main role of the registry is to educate.

Colon Cancer High Risk Clinic

The High Risk Cancer Assessment Clinic offers the opportunity for high-risk patients to do "one-stop" shopping when they require multiple services. Patients benefit from taking care of all their needs in a single afternoon and in one convenient location. Anyone with an inherited colorectal cancer  syndrome, including Hereditary Non-Polyposis Colorectal Cancer (HNPCC), Familial Adenomatous Polyposis (FAP), Peutz-Jeghers syndrome (PJS) or Juvenile Polyposis (JP) is considered to be high risk and can access the services of the High Risk Cancer Assessment Clinic.

At the High Risk Clinic, the registry coordinator will take patients' medical histories and prepare family pedigrees. Patients undergo necessary tests, such as colonoscopies  or esophagogastroduodenoscopies, and meet with genetic counselors and geneticists who can provide a comprehensive program of genetic counseling and testing.

Questions and Schedule an appointment

If you, a family member or friend are interested in joining our registry program or want to schedule an appointment, please contact Jenny Lin, MBA, Manager of Oncology Data Center, at  732 923-6510, or email jlin@barnabashealth.org or Sherry Grumet, MS, CGC, Certified Cancer Genetic Counselor, at 732 923-6576, or email sgrumet@barnabashealth.org

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